Online Resources

Acoustic neuroma Association

ANA provides information and networking support for pre- and post-treatment acoustic neuroma patients.

 

 

Alexander Graham Bell Association for the Deaf and Hard of Hearing

This site provides information that adheres to AG Bell's mission of focusing specifically on children with hearing loss, providing ongoing support and advocacy for parents, professionals and other interested parties.

 

American Brain Tumor Association

This Des Plaines, Illinois, organization provides information and funds brain tumor research. ABTA's website now includes an online version of the booklet, "A Primer of Brain Tumors."

 

American Speech-Language-Hearing Association 

The American Speech-Language-Hearing Association (ASHA) is the national professional, scientific, and credentialing association for 186,000 members and affiliates who are audiologists; speech-language pathologists; speech, language, and hearing scientists; audiology and speech-language pathology support personnel; and students.

 

American Tinnitus Association

ATA is a global leader in the effort to find a cure for tinnitus. They bring together patients, researchers, healthcare professionals, industry partners and lawmakers to develop tinnitus management tools and fund vital tinnitus research.

 

Babyhearing.org

Boys Town National Research Hospital hosts this site as a resource to support families of children with hearing loss.

 

CDC - Hearing Loss in Children

Hearing loss can affect a child’s ability to develop communication, language, and social skills. The earlier children with hearing loss start getting services, the more likely they are to reach their full potential. If you are a parent and you suspect your child has hearing loss, trust your instincts and speak with your child’s doctor. Don’t wait!

 

CyberKnife Radiosurgery Center of Iowa

Mercy Cancer Center offers Iowa’s only flexible stereotactic radiosurgery system (SRS). CyberKnife® is the only SRS system that utilizes robotic technology combined with image-guidance to administer precision radiation treatments to previously inoperable tumors without the need for rigid patient restraints or undue patient discomfort. The CyberKnife® Center provides hope for some patients who may have received the maximum allowable dose of radiation or have been told their condition is untreatable.

 

Ear Community

Ear Community is a charitable organization that offers a warm and supportive community for individuals born with Microtia and Atresia, Hemifacial Microsomia, Treacher Collins Syndrome, and Goldenhar Syndrome, including varying degrees of hearing loss. Their website helps patients explore their options, self acceptance, advocacy, find helpful resources, and learn about the latest in technology for help with hearing loss and reconstructive surgical options.

 

Hands & Voices

Hands & Voices is a non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing. They are non-biased about communication methodologies and believe that families can make the best choices for their child if they have access to good information and support. Their membership includes families who communicate manually and/or orally. From American Sign Language to cochlear implants, their organization represents people from all different approaches to, and experiences with, deafness or hearing loss. They have local chapters comprised mainly of parents along with professionals.

 

Hearing Loss Association

The Hearing Loss Association has a mission to open the world of communication to people with hearing loss by providing information, education, support and advocacy. Their website provides information regarding advocacy, online resources, their conventions, publications, chapters and state associations and access to a listserv for parents of hard of hearing children.

 

Infanthearing.org

NCHAM serves as the National Resource Center for the implementation and improvement of comprehensive and effective Early Hearing Detection and Intervention (EHDI) systems. As a multidisciplinary Center, their goal is to ensure that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical intervention.

 

Listen Up

Listen Up specializes in information for the deaf and hard of hearing. The main purpose of this site is to advocate for the rights of children affected by hearing loss and to "make life as good for them as it can possibly be."

 

Meniere's Disease Information Center

Menieres.org was founded to provide a "home" of support for those who are suffering from Meniere's Disease. Their primary goal is to provide a warm home on the web for you to lean a shoulder on, share your tips, experiences, and tears with other sufferers.

 

National Institute on Deafness and Other Communication Disorders

The NIDCD supports human communication research. This site provides health information, strategic planning, intramural and research funding as well as other information about NIDCD.

 

Neurosurgery://On-Call

This site offers Health Resources on a variety of neurological diseases, patient resources, and a general overview of neurosurgery. See their web guide for help locating other neuroscience and neurosurgical resources, indexed by specific clinical topics

 

The Vestibular Disorders Association

VEDA is a non-profit organization that serves people with vestibular disorders and the health professionals who treat them.